Happy Birthday, Healthcare Reform!

23 03 2011

My amazing boy who has a “pre-existing condition”– autism– has insurance thanks to the hard work, and courage of good people like John Boccieri. I will always be thankful to him, his staff and his family for all they had to put up with because of people who didn’t understand the benefit of passing this into law.  Thank you!

This means more to me then you’ll ever know…





Open Letter to Asbury University

4 11 2010

Asbury University (formerly Asbury College) is playing Fox News in the campus gym and cafeteria. When did Asbury start teaching propaganda instead of truth? When did it lose its compassion?

Shortly after college I married a fellow Asburian who declared his homosexuality a year later. He was told by an Asbury faculty member that if he got married he would be “cured” of his homosexuality. I was the victim of this declaration and yet I was able to forgive the College for its naiveté.  

Now, the views espoused are attacks against my son (who is the child of my straight second husband). And that I cannot forgive so easily.

My son is on the autism spectrum. The Republican Party and its mouthpiece, Fox News, have mocked those with autism specifically and those with pre-existing conditions more generally. Leaders in the Republican Party think my son is a wrecked car with “autism”.  I cannot—and will not—support a political party who values money over people.  I cannot—and will not—support an institution that condones ridiculing “the least of these”.

As a result of Asbury’s shift from a conservative Christian institution to an extension of the political party whose leaders call my son—who is a gift from God, perfect and created in God’s own image—unworthy of equality;  I am changing my Will so that it no longer includes your institution.

The Jesus I know doesn’t think little kids with pre-existing conditions should be discriminated against in favor of profits. The Jesus I know doesn’t hate or ridicule people who disagree with him. The Jesus I know teaches compassion and charity.

“I like your Christ. I do not like your Christians. They are not much like your Christ.” –Gandhi

Please call Asbury and tell them to turn off Fox. 1-859-858-3511 (X 2105 alumni office)





From the Mouth of Babes

5 10 2010

 

We voted yesterday. I picked my son up from school and we went together to the Board of Elections. After some great conversation with the lady at the poll, he took the e-pen and card and together we cast our vote. Since we were the only two there (besides the really nice lady) we were able to talk.

My son has met Frances Strickland– and likes her– so he was thrilled to vote for Ted Strickland for Governor. We’ve talked about the obstructionism in the Senate so he wanted to pick Fisher for Senate. And, when we got to the congressional candidates– he immediately marked John A. Boccieri and declared “That’s our friend!”

Vote Early! Vote Often! Vote Boccieri!





What the GOP thinks about Autism

24 09 2010

The Republicans think my son is a wrecked car with “autism”

Mike Huckabee:

http://www.youtube.com/watch?v=GoCnxnStMpU

Sharron Angle:

http://www.youtube.com/watch?v=9M46hn8qtJI

Why in the world would any family or friend (teacher, doctor, therapist) of a child with autism vote for the Tea- GOP?!





Sharron Angle, Nevada Tea Party, Mocks Autism

23 09 2010

Here is the link to write Ms. Angle a little note: 

http://sharronangle.com/contact

Here is the link to contribute to Harry Reid:

https://secure.harryreid.com/ee/index.php/contribute

This woman has picked a fight with the wrong people… let’s let her know!





A Little Bit of Normalcy

23 09 2010

Autism is no longer an uninsurable pre-existing condition

For well over a year we fought for the opportunity to pay for insurance for our son who has, until this month– been denied on the basis of his “pre-existing condition”. Jay has autism. He’s healthy and happy. And now… he has insurance!

I am thankful to so many who had a part in making this happen… to family and friends… to politicians and insurance companies who gave me lip service and made me angry… but, it really came down to our Congressman– John Boccieri, who took a big political chance… whose family endured threats and as recently as last week was on the front page of the NY Times with a man’s finger in his face… He voted for healthcare reform.

I don’t believe that when President Obama signed HCR he had any thought of the children with autism who were denied this often taken for granted thing– but, his signature gave my son a little piece of normalcy. For that I will always be thankful.

The Republicans have sworn to work for the repeal of HCR… This would be a huge step backwards… and, we can not allow it to happen.  Vote. Stand up for those who, like Congressman Boccieri, have stood up for our kids!

Tonight, my son goes to bed with insurance. And, I can sleep knowing that what I did mattered.





Federal Funding for Autism Research

3 04 2010

One in every 110 children has autism. One in 70 boys is affected. There are almost 750,000 children in the United States who test somewhere on the autism spectrum.

In FY 2008, Federal spending on autism research was just $177 Million and is expected to increase to $282 million in FY09 due to $89 million in one-time stimulus funds…   That’s less than $40.00 per person with autism in the United States. 

Federal Funding for Defense Research in FY2009: $6,692 Million

“During his campaign, President Obama committed to $1 billion of annual federal spending on autism by 2012. In October, he identified autism as one of his administration’s top three public health priorities. This new prevalence data must compel Congress to take action to fulfill the President’s promise in the upcoming FY 2011 budget process,” said Mark Roithmayr, President of Autism Speaks.

It’s time to write our elected officials… and hold them to their promise. http://www.usa.gov/Contact/Elected.shtml