Perseverance

16 06 2012

4th grade was a nightmare! We knew there were issues (seriously, you don’t give report cards to kids with disabilities?! Hellowwww ADA!) but the severity and number of issues didn’t come out until after the school year was over… 4th grade with “General Curriculum” on his IEP means (according to IDEA) that he should have been taught the “same material taught to non-disabled” 4th graders…. not the K-2 pre-reading curriculum that the district gave me as a result of my FERPA (Family Education Rights and Privacy Act) request. Then there was the issue with earplugs, fig-its, the boy who terrorized him, the change of placement without team agreement (or even notification), the humiliation in the gen ed classroom… no wonder he’s been diagnosed with an anxiety disorder!

So… in July (2011) we filled a complaint with the US Department of Education Office of Civil Rights (OCR) and submitted more than 5 inches of doubled sided documentation. In December we received a “letter of findings” that basically told us that we said this and the district said that– OCR just doesn’t know what really happened. Seriously. Did they not look at the documentation? So… in January we sent in our appeal to the Washington, DC office– with the original 5 inches of documentation plus another 2 inches. According to them it’s “impossible” to tell how long this is going to take. (And we are supposed to believe that they are serious about disability law?!– without enforcement there may as well not be a law.)

So… here we are at the end of 5th grade… Jay spent the last school year in full inclusion with an aide and personal FM system used only during lectures. He passed all subjects (even without having been taught any subject in 4th grade) and has increased 3 years’ reading levels. He has friends– REAL FRIENDS who seek him out! He has a crush that seems to be returned… he has made more progress in one year than he did in the previous 4.

This summer he is taking speech, swimming, and cornet. He is doing a research project about penguin behavior with a typical friend– this is part of a bigger– grown up– research project and their documentary at the end of the summer will become part of the zoo’s educational program. We are taking his group of 6 on field trips to the Science Center… one of the girls is setting up a book club that Jay will be part of. He’s working so hard– and having fun!

J has a social group. Kids who seek him out... who like him quirks and all...

I am exhausted!

Great works and accomplished not by strength but by perseverance. Samuel Johnson

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